Digital rare disease communities are changing the dynamics of drug development, interactive technology, and global communications. Explore the possibilities from multiple perspectives, featuring representatives from rare communities, a pharmaceutical company, research groups, and communications specialties.
A documentary short-film about the fear, the hope, the strength, and the challenges people in the rare disease community face every day. Visit RareInCommon.com to learn more and sign up for news about upcoming screenings near you throughout 2016.
We were excited to have Andra of @LipodystrophyLU tape several episodes of the Rare in Common podcast at #2018GGSummit. Check out episode #8 at rareincommon.com to hear our Executive Director @AngieRowe as well as @CORareAdvocate & @cvonraesfeld! #RICast #CareAboutRare pic.twitter.com/H2xMOvMhen